Parents & Families

Information to help you navigate your child's condition and treatment

Parents and families

Welcome

When your child is diagnosed with kidney disease, you may feel overwhelmed. You're not alone - the South East RENAL network is here to support your family through every step. Below you'll find resources, information, and support services to help you navigate your child's care.

Information

infoKID

infoKID logo

infoKID is a website that provides information for parents and carers about kidney conditions. This information has been written and is endorsed by kidney specialists across the UK.

Visit infoKID.org.uk →

What do our kidneys do

Understanding the urinary system and how kidneys work

Read more on infoKID →

What tests might your child have

Information about kidney tests and diagnostic procedures

Read more on infoKID →

Different kidney conditions

Learn about kidney conditions including AKI, CKD, and Nephrotic Syndrome

Read more on infoKID →

Glossary of Common Terms

AKI – Acute Kidney Injury
CKD – Chronic Kidney Disease
eGFR – Kidney function measure
Dialysis – Treatment replacing kidney function
Transplant – Kidney from donor
Nephrologist – Kidney specialist doctor

Help & Support

infoKID logo

Practical Guidance

Including benefits, financial support, travel, accommodation, education, DLA, and carers' allowance.

Read more on infoKID →
Kidney Care UK logo

Kidney Care UK

The UK's leading kidney patient support charity

Visit Kidney Care UK →
BAPN logo

British Association for Paediatric Nephrology

Supporting excellence in children's kidney care

Visit BAPN →

Other Useful Resources

National Kidney Federation logo

National Kidney Federation

Patient support and information

Visit NKF →
Contact logo

Contact

Support and advice for families with disabled children

Visit Contact →

Research

Kidney Research UK logo

Kidney Research UK

Funding research to prevent, treat and cure all types of kidney disease.

Visit Kidney Research UK →
UKKA logo

UK Renal Registry (UKRR)

Collates data from kidney centres and hospital laboratories to improve the care of patients with kidney disease in the UK.

It's data collection covers people on kidney replacement therapy (KRT), acute kidney injury (AKI), and advanced CKD. Data about children on dialysis or with a kidney transplant have been collated since 2009.

Visit UKRR Website →
RaDaR logo

RaDaR

The National Registry of Rare Kidney Diseases.

Learn more about RaDaR →

UK Transplant Registry

The UK Transplant Registry is a computerised system that stores information about organ donors, kidney transplants and transplant patients.

It is essential to facilitate allocation and matching of organs and is also used for improving patient care based on robust evidence.

Visit UK Transplant Registry →

About South East RENAL

South East RENAL logo

South East RENAL is the Children's Kidney Network for South East England, connecting 25 hospitals to provide coordinated, expert care.

Our Mission

Ensuring every child receives the best possible kidney care through collaboration, no matter where they are seen.

Our Network

25 hospitals working together • 1 specialist centre • 10 nephrology clinics

Our Approach

Family-centred care, education, research, and quality improvement.

10

Specialist Nephrology Clinics

Hospitals with dedicated paediatric nephrology clinics

14

Link Paediatricians

Hospitals with link paediatricians

1

Tertiary Centre

Evelina London Children's Hospital - specialist hub for the network

Evelina London Children's Hospital

Evelina London Logo

Evelina London is the tertiary specialist centre for South East RENAL.

The Team

Consultant nephrologists, specialist nurses, dietitians, pharmacists, renal psychologists.

Services

Haemodialysis, peritoneal dialysis, transplantation, CKD clinics, specialist clinics.

Contact

Evelina London Children's Hospital
Westminster Bridge Road, London SE1 7EH

Full Contact Details

Your Local Hospital

The South East RENAL network includes 25 hospitals across the South East of England.

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